Last October, I was diagnosed with a 2 mm IDC and 12 mm DCIS in my right breast, with clear lymph nodes. I had two surgeries, 15 sessions of radiation, and started tamoxifen, but I stopped after taking it for two months. I completed all treatment in April this year.
This November, I had my first mammogram and ultrasound since finishing treatment, and they found a 6 mm area of classical LCIS in my left breast. Now I need another excision. My surgeon mentioned that I could consider a double… read more
If you're unsure, then a 2nd opinion is warranted. This is your decision about your body/life & you need to do what you think is best for you after you get your 2nd opinion, compare both of those opinions & make an educated decision based on the info you receive from both of the Drs along w your personal research so you can determine the best option for you & for being able to tend to your daughter's needs in the long term. It's a hard question to ask & an even harder answer to hear, but ask both Drs what your recurrence & survival odds are w a lumpectomy for the new LCIS & the other breast that had invasive ductal/in SITU cancers versus having a double mastectomy. You say your husband wants you to go the conservative route, but he doesn't have to live the rest of his life as a breast cancer patient & deal w the physical & mental aspects/stress of having cancer, various cancer treatments & worrying about it coming back again. Ask yourself what's his reasoning for you to go the conservative route? Is his reasoning about what's truly best for you or what's easier for him in the long run? From everything you described it sounds like your cancers are more likely to be aggressive or return in the long run & taking the conservative route isn't necessarily your best option. I wish you the best of luck w whichever option you choose ❤️
Hi Niki, my name is Cheryl. I'm a 6 time cancer patient, 2 times w breast cancer & 4 times w endometrial cancer. I'm going to give you my blunt & personal opinion based on what you've written above cuz there's just some things about your posts that got to me. If it was me I'd get the double mastectomy. I say this as someone who was 50 at her 1st breast cancer diagnosis, but my doctor said it had been growing for 5 + when I was diagnosed in 2017. I had a double mastectomy cuz I had 3 lumps in 3 different spots on my right breast so lumpectomy wasn't an option & also cuz my mom died of lobular breast cancer diagnosed at stage 4 a few years before I was diagnosed. I just finished a year of treatment for my 2nd breast cancer that was new, agressive & totally different cancer that showed up in Sept 2024.
You're under 50 which is considered on the young side for breast cancer and it's statistically more likely to be agressive when you are younger and/or pre-menopausal. You have ductal carcinoma & DCIS which is the most common type at about 90% & lobular which is less common at about 10% & thought to be more aggressive than ductal. You had 2 different lumpectomy surgeries for the ductal/DCIS which means they probably didn't get clear margins on the 1st surgery so you had to have the 2nd surgery in order to obtain clear margins. That lobular LCIS is pretty realistically on it's way to becoming a full blown invasive lobular cancer sometime in the future based on what your doctor has & has not said. You have/had been diagnosed w cancer in both breasts w/in about a year which may have started in just 1 breast or could have been in both breasts the entire time. If the lobular wasn't there when you got your first diagnosis & has just popped up w/in a year of the ductal that is really soon. You have a daughter that needs your care & help. While it may be tempting to go for the lumpectomy cuz the healing time is shorter, the double mastectomy is more likely to reduce your risk of either cancer coming back in the future when compared to the lumpectomies.
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Thank you so much for taking the time to reply and for explaining everything so kindly and clearly—it really means a lot to me.
My surgeon is very confident, but when she explains things, she is often quite rushed. She told me that I definitely need to have an excision for the LCIS, which I understand and am comfortable with. However, when she started to prefer a mastectomy, I felt the need to pause and think more carefully.
My husband prefers that I proceed with the excision only and then monitor closely, and if needed in the future, consider further surgery at that time. I do understand the risk. So I’m trying to find the second opinion from the specialist as well.
How should someone approach the decision between close monitoring versus double mastectomy after finding LCIS following previous IDC and DCIS treatment?
First, it's completely understandable to feel stressed about facing another decision so soon after finishing treatment. Your feelings are valid, and seeking a second Show Full Answer