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Stabilizing cancer-put in remission but the trade off is liver & kidney damage, heart and lung problems
How can Oncologist sincerely prescribe drugs that they know can cause these things? But they are quick to suggest ' Not everyone gets these problems'
So, you take that risk and hope you are not one that does and then it happens. So then we have to stop the drug, get labs until issues show improvement and restart the drug until it happens again and again until eventually permanent damage .… read more

July 7, 2025
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Answer Summary

Members opened up about the deeply conflicted feelings around cancer treatments that save lives while causing significant side effects, with... Read more

Members opened up about the deeply conflicted feelings around cancer treatments that save lives while causing significant side effects, with many sharing frustration over medications that damage organs, cause debilitating pain, or reduce quality of life even as doctors insist they're necessary for survival. Several members emphasized the critical importance of self-advocacy, choosing quality of life over quantity, tracking lab results personally (especially liver and kidney function), and refusing treatments when the risks outweigh personal values, with many finding peace in saying no to drugs like Kisqali, Verzenio, or aromatase inhibitors despite doctor pressure. A recurring theme was the tension between doctors focused on keeping patients alive at any cost and patients who feel their humanity, autonomy, and day-to-day suffering are overlooked, leading many to assert that they own their bodies and have the right to make final decisions about their care, even when it means walking away from standard protocols.

A MyBCTeam Member

@A MyBCTeam Member, I have like 10 pre-cancerous polyps in my stomach. I suspect your polyps and mine are the result of the chemical treatments we got. Because those are very bad for mucosa, which includes places like stomach, intestines and colon. It’s only when the doctors look that they can find those. All the mouth sores etc that women experience from chemo, it’s not just in the mouth! It’s all the way through our bodies. So no surprise there are polyps that pop up later. These are the real side effects that they don’t talk about. Don’t panic though, they’ll remove them and will monitor you regularly.
A trick for colonoscopies: to avoid the anus irritation from all the cleansing prior to it, I’ve been using a baby butt rash cream! It’s helped tremendously and I haven’t felt any pain whatsoever. I am surprised doctors don’t prescribe such an easy thing.

July 22, 2025 (edited)
A MyBCTeam Member

Hugs for everyone. Sending you all strength and comfort.

July 22, 2025
A MyBCTeam Member

I agree. Cancer is a huge $$$$$ maker. This is why I don't believe there will ever be a cure. Think how much money would be lost.

July 7, 2025
A MyBCTeam Member

Thank you! Hugs are needed every day.

August 3, 2025
A MyBCTeam Member

I have permanent neuropathy in my feet hands and part of my legs but I was not really aware of it until my chemo was over and I do weigh out the side effects vs. the treatment, and feel for me, that I am willing to live with these (at this time). I went into treatment with eyes wide open knowing that its a crap shoot for us to battle cancer and not come away with out some damage. these drugs are designed to kill our cancer cells but a lot of the healthy cells receive collateral damage.

July 11, 2025

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