I agree! My lymphedema started after my 6th chemo treatment. After METS were gone after 8th treatment I had a single mastectomy. The lymphedema persisted. I had PT locally, didn't help. My oncologist sent me to a Breast health/lymphedema specialist. She worked on me for a couple of months then started radiation treatment so couldn't make the drive to see her as much. She did recommend a compression sleeve and glove. I tried to order but was not told which compression strength I needed so that us on hold. I also got a prescription for a manual lymphedema pump! I do that once a day for 60 minutes and it has helped alot. Today was my 15th at home treatment treatment! I got mine through Tactille Medical!
They have videos on YouTube! I have the shorts, vest and left arm sleeve! Keep up the fight!

I had the single mastectomy and three lymph nodes removed, I did the exercises to make sure I got my range of motion back, and fortunately, never had any issues with lymphedema. Not all women experience lymphedema right away, some never, some it flares up even years later.

My surgeon explained what lymphedema was, what to look for, and stated I should call her office if I noticed swelling, tightness, or a loss of any of the range of motion I had gotten back.

I have had to wear compression socks for decades- and they are not comfortable- but they do the trick, but they were recommended by my orthopedic surgeon, and I had to be measured for them by the PT. You don't want your body to rely on the garments if it can handle the fluid on its own. Hugs!

I guess I am lucky, mine did.
So sorry you are experiencing this!

Yes, give a call, my surgeon did not describe/ demonstrate the exercises until a post-op checkout where she determined I was healed enough to begin.

Can someone please share the excercises they did? My care team didn't give me anything to reference. I'll call them on Monday.