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Many women have reported they have learned more from women here about things related to Breast cancer than what their doctors have told them and also women who have complained about side effects are often told their side effects must be because of 'something' else
What have you learned here that you didn't learn from your doctor and what side effects of your treatments were dismissed and told something else must be causing them
And if anyone has a theory why doctors don't disclose… read more
Answer Summary
Members overwhelmingly shared that doctors routinely minimize or outright deny treatment side effects, with radiation-related shoulder pain,... Read more
The 2 biggest lies, not just telling me what could happen but outwardly lying about them. I mentioned both of these several times here. I was on this site weeks, maybe 2 months before my surgery and the first two things I learned here was Lymphedema was terrible, nothing really helped it and it doesn't go away and how painful the hormone blockers were. So, I meet with my surgeon, she mentions lymphedema and then goes on 'If it happens, we will fit you with a sleeve and that will help it'. Then I met with my oncologist for the first time, and she prescribed anastrozole. It took me 2 months to take it. With her and my nurse navigator trying to convince once I take it for a while, the side effects go away. These 2 professionals lied to me. Unacceptable. So I never put 100% trust in anything they say. I trust the women here first.
For one, the primary care physician usually provided most of the care . Now, its a specialist for everything. When my PC doctor prescribed thyroid medication back in 2012 he didn't send me to an endocrinologist. He prescribed the medication. It really is a mess nowadays. I hate going to a regular doctor now only to be given a bunch of referrals to see one specialist after another but then it might be answer to treat possible side effects of cancer treatments. Confusing situation.
@A MyBCTeam Member Now I understand better why they are watching you. Sometimes these drugs cause heart, lung, kidney problems but if you already have a problem before Breast cancer happened, I can see why they would want to be cautious. But what can do to stop recurrence? Would a heart monitor be helpful at all in your situation? This is really complicated, I don't have the answer but please keep us updated, what you are going through might be very helpful to other women especially as we get older and develop different health problems. 🥰
I have been blessed. I have had my oncologist since my very first diagnosis in 2019 and he has always been upfront with everything. He told me from the start he doesn't like to sugar coat anything
@A MyBCTeam Member I have realized that my oncologist just wants blood work and a check in to see how I’m feeling. But when I actually tell her how I’m feeling she won’t say it’s the medication.
I can talk to my primary care doctor. He’s the one who prescribed my gabapentin, cholesterol meds and my referral to a hand specialist. My psychiatrist prescribed my lorazepam. So I don’t rely on my oncologist for anything other than bloodwork and Anastrozole.
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