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A MyBCTeam Member asked a question 💭
Lakewood, CO

A fellow breast cancer survivor mentioned her oncologist is putting her on testosterone along with AI, saying T helps with a lot of AI side effects. Anyone heard of this? I’ll ask my doctor, but I like to check with y’all first so I can approach him with informed questions. Thanks for any info you have about this.

September 21, 2023
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A MyBCTeam Member

My lymph nodes were clear at time of my bilateral mastectomy.. in 2020…so maybe I’m lower risk for reoccurrence? And I’m 64. Also some new studies have shown if your Agendia tumor results show low risk of reoccurrence.. then 2 years of tamoxifen is enough. Bottom line is — I was the one making the choice to stop Tamoxifen and several doctor friends and my UCSF oncologist all agreed w me.

October 4, 2023
A MyBCTeam Member

I liked it better when I saw AI and thought artificial intelligence. Now this is my reality. I am not there, yet but am going to be on them I was told for 5 to 10 years. Melissa I have heard others saying bad side effects from tamoxifen, did they put on a different med? if so working any better for you?

September 21, 2023
A MyBCTeam Member

@A MyBCTeam Member Thanks for the info! I will relay that. I was wondering why, if there was a good way to alleviate the AI side effects, no one was recommending or talking about it. See? That’s why I consult with the brain trust on this site!

September 21, 2023
A MyBCTeam Member

See “Dr.Susan Love’s Breast Book” pg 114.

It says newest studies show that circulating estrogen and testosterone are associated with an increased risk of breast cancer in both pre-menopausal and menopausal women.

Red light below.

*******Please tell your friend about this and have her tell her oncologist.

September 21, 2023
A MyBCTeam Member

Androgens do turn to estrogen so Testosterone being an androgen. I can not have them while trying to limit circulating estrogen. I will say when I was on it prior to my breast cancer diagnosis. It was a cream and I loved it! I had energy and helped with libido .. Now that's out. As is taking DHEA which is a natural substance we make that is the precursor to testosterone and my levels were always way below norm so taking 5 mgs was also great for energy... But alas, can't take that either. So def inquire and dig into research. Things change quickly so maybe there are some new things about testosterone. Best!

September 25, 2023

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