To answer the question, i have a few:
1. The stigma - i felt like I was sullied and damaged goods even though that isn't the case
2. The fear that not all of it was caught and somewhere in your body there is a trace of it left that is growing
3. The emotional and physical toll - that rollercoaster is hard to get off of
4. The pros and cons of maintenance meds
5. Body image struggles
6. The (what seems) continuous saga of multiple surgeries
7. The struggle to adjust to your new normal
8. How chemo and radiation are not curse words. Chemo has come a long way from what it used to be. Radiation sounds a lot scarier than what it really is.
9. Mourning the loss of a body part (breasts)
10. The loss of friends and family who don't want to hear about or deal with your struggles. They treat you like you're contagious.

These are just some that I can think of.
Can any of you relate to any of these? Let's talk about this. I think this is a very important topic.

Without a doubt, dealing with life after treatment is not talked about enough. Physical treatment may have ended, but for me and so many others I know, that is when mental treatment should have begun. No, we are not depressed. It is about figuring out who you are, because you are definitely not the same person you were before breast cancer.

All the ongoing issues we have after treatment is done. Thankful to be No Evidence of Disease currently, but definitely no where near who I was physically, mentally, or emotionally before diagnosis. And..... everyone just assumes you are done with treatment so you are fine and expect you to bounce right back. The neuropathy pain, lack of strength, fatigue, body issues, brain fog, fear of reoccurance, etc.. is so much to still deal with. We are completely changed and not the same person we started with. I dont think friends and family get that or are prepared for it.

I feel like "post treatment life" is not EVER talked about enough. Many main stream docs act like long term side affects are not a thing, but they most certainly are. They of course can vary greatly but they are there. Any combination of surgeries, chemo, radiation, hormone therapy, causes lots of changes that are rarely talked about. I didn't know what I didn't know, so its hard to ask questions. It has always been helpful for me to reach out to support groups, talk with others in similar circumstances, to share thoughts and concerns, and to see what has helped. It feels selfish to say, but I have found comfort knowing I am not the only person in the world battling weight loss, insanely dry skin, peeling fingernails and toenails that chip of in chunks, lack of libido, focus and concentration issues to name a few. I am grateful after all my treatment, I am here, in pretty good health, and trying to move forward. I am currently trying to figure out the best way to try to track food and exercise, I am not a techie at all, and I'm just not good at doing this, even though I know its one thing that is very important for me to move forward. Much love and support to sisters starting/in/after the battle, keep fighting, and always reach our for help.

Sex! Life after treatment and dealing with estrogen blockers. I want my sex drive back !