I had a lot of what is called 'pulsatile tinnitus'-the sound you hear that goes along with your heartbeat. I would normally get it once in awhile-but it was pronounced with chemo

Not so bad during the day, as there are other sounds to distract, my PCP contacted the insurance company, and I have a list of about 6 hearing professionals in network to research, there may be a something similiar to a white noise machine that can help at night. Today is the first day of summer break from school- so I am being lazy today, and will look into it next week. I'll let you know if anything positive comes from it!

Thank you so much for such a thorough answer, yes it has been very frustrating, I also have tinnitus in the same ear and it certainly takes some time to adjust to, I am sorry to hear this has been side effect for you. One does adjust to it however it takes a while not to be aware of it 24/7.

I haven't lost my hearing, but a couple of months after finishing my chemo (which included Carboplatin) I was doing dishes and heard cicadas- I was surprised because I am a huge nature fan, and was not expecting them, and had not seen any evidence of them. I went outside and realized the sound was still at the same volume, the next realization was that the noise was inside my head. Apparently some people on Carboplatin develop a type of tinnitus. I hear cicadas 24-7, which makes it hard to sleep sometimes.

Other chemo drugs that cause your hair to fall out, can also damage the tiny hairs in your ears that are necessary for the hearing process. Unfortunately, those hairs do not regenerate. Another reason for hearing loss can be nerve damage from the drugs.

Data on how many of us are affected with ototoxicity is not accurate, because it is rare that pre-treatment hearing tests are done(- though hearing professionals feel it should be part of the protocol).

I hope there is something that can help offset the hearing loss for you, I am sure it is very frustrating situation.

Hugs!