My doctor says that the 5 year data looks good for the nipple sparing mastectomy and the recurrence rate, but they don't have the 20 year data yet. I just worry about leaving that breast tissue. Also, I thought a tissue expander was the standard for reconstruction, but my PS says I'm a candidate for direct implant. I appreciate any and all advice.
I would wait for the 10-20 year data unless you want to be part of the “studies”. There just isn’t enough information. I wish I would have waited for the 20 year Data on the “new improved” implants. I got my first implants in 2003 (saline). So 15 years ago - and all the long term information/ studies and risks are just starting to trickle out. Then the new silicone was improved in 2005. I waited til 2011 to switch them- so 6 years - by 2012 - I was deathly ill and had no idea why. Figured it out last year 2017 - went to have them removed - I didn’t want the cancer they were found to cause now and couldn’t get them out fast enough and that’s when/ how I discovered I had cancer ☹️ I was too late 👎🏼 And so here I am. That’s was 14 years - but the 5 year data looked fabulous and safe 😳. Good luck. None of these decisions are easy and none of the choices are appealing. I did have a friend last year diagnosed at 39 - she did immediate reconstruction direct to implant - skin sparing etc ... they didn’t get clean margins because they were too concerned keeping all the skin and didnt want to compromise the cosmetic result - so they didnt go back and get clean margins - they said “oh just a few rounds of radiation should get that...”. Which she was so scared of that she never did the radiation - soooooo.... not sure what’s going to become her situation at this point. 😳 I personally didn’t want any chance of chemo or radiation. I was very surgically aggressive and like zia - removed the nipples and everything. Good luck to you ❤️❤️❤️
Hi Mel! I was not a candidate for direct implant. They took so much tissue that I was I bit concave. Since my sister had bc at 37, I already had my mind made up to “take it all,” if I was ever diagnosed. I opted to have them take my nipples, as it lowered my chances for reoccurrence. It’s no big deal to me, as I will get tattoos later, as did my sister and best friend. My doctor said our med school out here had been conducting research on nipple sparing. I have head of a few people getting an implant without reconstruction. Mine wasn’t bad at all. A few days ago, when I got the exchange, my doctor cleaned up my scar and now I just have a tiny thin line. Hope this helps. It’s a big decision, but just do what’s right for you! 😊
I was direct to implant, nipple sparing. I liked the idea on just one surgery, however, I hated the implants (anatomical, teardrop shaped). They were "malpositioned" and heavy and hard. I ended up doing an implant exchange 7 months later. So, still ended-up with 2 surgeries, but am much happier. That was just my situation. If my implants were fine, it would have been a different story. btw, the original surgery was 10 1/2 hours long. I had no idea it could be that long and being under for so many hours was hard on my body.
I had a direct implant. It just depends on how much skin you have after masectomy
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