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Has anyone tried to or asked your oncologist about reducing your letrozole dosage 1/2 daily or at least every other day? I went to a respected hormone dr here about my fatigue and emotions from my letrozole and he suggested this
He explained the dosage of 2.5 mg would be given to a 300 lb person as well. ( I'm 160 lbs). It really got me to wondering about the dosage. I've been on this dosage for 26 months. My oncologist says there's no data that supports the effectiveness of lowering… read more
Hi, @A MyBCTeam Member, thanks for updating us- glad to hear your onco is willing to work with you on this.
So, what would you expect to see at your next bloodwork? Is it your serum estriol that is evaluated, and a lower level sought by DIM use? I’m very interested.
My integrative MD (who’s advice my onco is willing to consider) had suggested DIM among other suppliments. To be honest, I let that one in particularly dribble off out of rotation (had some probs with esphogael spasms related to chucking so many pills at the same time, but instead of spacing out, I decided to downsize my load).
Your post made me revisit what I used to know about it, and I see that my security in eating loads of crucifers is probably not the way to go- that a legit suppliments is probably best.
Again, I’ll look forward to another update, and hope that you see just the result your looking for so that you can find your way around these side effects while maintaining some measure of protection against relapse.
((Hug))
Yes, ‘keep it on the table’, meaning, keep discussing dosage change with your oncologist until you understand fully your oncologists reasoning. Sometimes we gain a clearer understanding by ruling out alternatives. If you have research that says a lowered dose may be beneficial to some, then he should be able to explain specifically why or why not particular to you.
((Another hug))
@A MyBCTeam Member, I know you’ve been at your wit’s end, too, with these endocrine modulators. Though you might like to chime in on bj’s thread.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC50...
((Hug))
I tried for several months then in June of 2018, started on Exemestane. I was doing pretty good but had a lot of dizziness which I’d had with letrozole too. I had an mri which was ok so I asked my oncologist if I could use DIM. She gave me her consent but I also took a break from my exemestane for the last month. I’m going to get my blood work done after this break and while on DIM to see if it can be just as effective as Exemestane.
Yes it was. I was having body pain before I started it that just seems to be increasing. I am going to see a doctor about the fact that I really think my body is rejecting the remaining expander I have. The other one already got infected and had to be removed. I have an auto-immune disease and my first instinct was to NOT have anything foreign put in my body but I stupidly let my surgeon talk me into it. I can't believe I did. I know better. Now if I get tested and I know whats tests will show that I am reacting to the expander...I will have it removed. As far as the hormone blocker, maybe it's playing a role too...so hard to tell. I am going to continue to take it and see how I feel. I appreciate the advice about the dosage...I am going to talk to my onc about that. Thanks so much!
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