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I saw two oncologists. Each one had a totally different approach.

Dr. 1 - recommended taxol (12wks) and herceptin (1yr)

Dr 2 - recommended no chemo due to size, tamoxifen only

Original diagnosis before mastectomy was DCIS grade 3 ER/PR +

April 20, 2017
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A MyBCTeam Member

I am fortunate enough to have spoken with several top docs in the country due to the nature of my job, I am also ER/PR neg and HER2 positive. My oncologist, my breast surgeon and the opinion of several other doctors is 12 months of Herceptin. I had a lumpectomy last month and I start chemo with Taxotere, Carboplatin and Herceptin 6 rounds and I'll continue with the Herceptin for a full 12 months.

April 24, 2017
A MyBCTeam Member

I did Taxotere, carboplatin and Herceptin for 8 rounds then a year of herceptin and perjeta after mastectomy. On my last treatment June 30th.

June 21, 2023
A MyBCTeam Member

As far as i know tamoxifen is only useful for er + cancer ie hormonal cancers. Since yours is negative it is pointless as it works by blocking the hormone receptors that cause the cancer.

April 23, 2017
A MyBCTeam Member

I had a lumpectomy, onco type low.one lymph node poss. now on Letrozole.

March 28, 2023
A MyBCTeam Member

Had grade 1 dcis in situ er+ Her2+ no node involvement. I had 11 rounds of taxol, then 6 months of Herceptin (check out Persephone Project. That research is what made me break "protocol" and shorten it to 6 months) , then 16 rounds tumor bed radiation. Finished it all in May 2020. So far, so good.

December 28, 2022

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