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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 22, 2017
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A MyBCTeam Member

The risk is 0.005%, it's very rare.

March 24, 2017
A MyBCTeam Member

It's not as rare as you think.. its just under reported... not enough awareness about it yet.. but its coming out more and more

May 30, 2018
A MyBCTeam Member

The statistics quoted in 2017 are as follows: USA 1:10-30,000 lifetime risk AUSTRALIA 1:1,000. Truth is that reporting incidence is difficult based on the limitations of current Database in FDA. As of February, 2017 there were 359 cases that have been reported since 2010. Unfortunately, I am in contact with approx. 50 women with BIA-ALCL and 1/2 of us have NOT been reported and included in the FDA's current count. Therefore the incidence rates are inaccurate and have increased exponentially since BIA-ALCL has increased in awareness within the last 2 years. Approximately 50% of diagnosed women are Reconstruction patients who where never advised of the risk. If you would like more information please don't hesitate to contact me. Best wishes for your healing journey, Terri (BIA-ALCL Stage IV)

May 26, 2017
A MyBCTeam Member

I was Dx'd with Stage IV BIA-ALCL in 2015. The rarity of this disease is inaccurate due to FDA reporting limitations. About 1/2 of Dx'd women are Reconstruction patients. About 1/2 of us, who have met through FB social media have not been reported to FDA.

May 19, 2017
A MyBCTeam Member

I have a girlfriend that has implants hers were leaking they had to put new ones

April 4, 2017

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Rehoboth, MA