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A MyBCTeam Member asked a question ๐Ÿ’ญ
Avon Lake, OH

I know many of us suffer from chemo brain, I am also on xanex and my ONC wants me to taper off of it. When I was looking at all the horrible side effects I noticed memory loss at the top of the list. I wonder how much of my memory loss and fatigue are coming from the xanex, not the 6 months of chemo. It just gives me more motivation to taper off of it as quick as I can.

March 4, 2017
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A MyBCTeam Member

I've been on and off and it's the same for me. So the fatigue and memory loss I have is post treatment and the fall out from that. It's took a couple years to recover from chemo brain and I only got back to about 90-95% and somethings are just lost. I had to rememorise my SS# and I basically played brain games to get back to the 90-95%. I had insane memory and recall precancer which isn't quite the same now and my ability to comprehend and learn new things diminished. Fatigue takes years to get passed and again it's never back to what it was. It's our new normal. But for me Xanax has helped not hindered. But I also wasn't in menopause yet and the lack of estrogen to my brain and other areas is playing into memory and fatigue as well. Plus chemo expressed my gene for celiac so I have to contend with that and one of many symptoms of glutening is fatigue and brain fog. So based on my experience Xanax is the least of my issues. Lol. Remember you are going to slowly recover it will be a gradual climb but it won't be steady you will have days where you dip back down just not all the way back down and then the climb starts again. And this can take 18-24 months. I put mine in high gear by training for the Avon walk 3 months after finishing. So I think I was back to about 90% by 8 months. But I have some serious relapses from other issues brought on by treatment. I had an adrenal storm issue and was over producing cortisol for years which lead to adrenal fatigue, then the celiac diagnosis and then my thyroid. So just pay attention to your body because chemo and radiation have treats for us the rest of our lives ๐Ÿ˜–

March 4, 2017
A MyBCTeam Member

When you are dependent on any drug to sleep it does take awhile to restablish good sleep patterns. Slowly I am beginning to get a good night's sleep. As I am sleeping better my fatigue is also getting better. I make sure I incorperate about 90 minutes of exercise every day. I am usually walking 3-4 miles, doing yoga and my PT arm exercises using weights and weighted bars. So far side effects from radiation are minimal.

March 30, 2017
A MyBCTeam Member

Yay that is such good news. I hate taking medicines and wish I didn't. I never had to take any pain meds or anything for my Chemo Brain. The only meds I needed was the nausea and steroids after each treatment.

March 29, 2017
A MyBCTeam Member

It gets better over time usually. Fatigue does impact it though. I still have days where I can tell I've overdone it because I suddenly feel like I'm back in chemo brain hell and know I just have to take it easy for a couple days to allow my body to catch up to my brain which still acts like i never had cancer thinking I can do all I did in a day before even now.

March 26, 2017
A MyBCTeam Member

How much Xanex do you take? I did not sleep when I tried to go off it, did not sleep so I stayed on it. I take a very low dose.

March 26, 2017

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