Well here's an update ladies. I tried all three AIs and ended up in the ER screaming in pain and completely unable to walk on each of them. So we just tried tamoxifen and not only did I end up in the ER in excrutiating pain but I developed an ulcer that encapsulated my cornea causing blindness in that eye. I saw the top corneal specialist here in Austin and had several embryonic stem cell patches to try to save my eye. They cultured out the ulcer and what grew is often found in soil. Something like pailomyces. - fungal infection. The tamoxifen caused me to become so immune compromised that a piece of dust soil that flew in my eye embedded causing an ulcer this size of my cornea. I can say that the pain was worse than anything I've ever felt in my life. It made chemotherapy seem like a vacation. The corneal specialist said that the cornea is the most painful tissue on the human body. Boy do I know what she's talking about now. She said that it brings 300 pound football players down to their knees. After two months of blindness, I am so happy to report that I am able to see, thanks in part to an amazing team of corneal specialists and embryonic stem cell patches. I have to take Acyclovir three times a day for six months to ensure that the ulcer does not come back. So unfortunately I am a sitting duck, not taking any medication to prevent the cancer from coming back. . I am looking for a clinical trial to join and hopefully can find something. In the meantime, I am having a total hysterectomy next Thursday with the Divinci procedure. Praying for a quick recovery. I am so envious of people that have cancer, get treated, and go on with life without any problems. I feel as if I have been so sick for two years. But 2017 is going to be my year. Thank you all, and I wish you a very happy holiday and continued health.

I was just thinking the same thing! I could see light at the end of the tunnel after BMX and during chemo, 10 years is just too long to feel this bad!

Yes pot is great for that type of pain. Unfortunately not deep bone pain. It's worth a try. It helped me with chemo and tomoxifen pain.

Go Heidi go. You are like the pink bunny you just go and get better leave 2016 in the dust. I am sure a trial will come along that will be good for you, taking the uterus out will be a great help too. I will remember mask, gloves and goggles when gardening. I have read that the dust and soil could cause issues with compromised immunity but wow, a little spec of almost invisible dust. I am glad you were close and knew of the best eye docs. You made it this far you can go all the way to wherever you want to go. Are you ER/PR & her - or +?

The alternative is not better . I thought the same thing and wanted to quit so many times but I have stayed with it and now only have a year and a half to freedom. So please stick with it.