Has anyone experienced Lymphodema anywhere other than the arm (i.e. breast, arm pit, back/flank)?
Yes, flank on the side lymph nodes were taken out. Look up lumphadema guru .
I have had mild trunkal LE since my BMX without reconstruction. I massage my chest with lotion after every shower and during winter I wear tight fitting camisoles or athletic compression tops from UnderArmor or shape wear tops from Tahari or CASS.
Massage of lymph fluid does help. My therapist said, if you have scar tissue, which alot of us have. That the fluid can't drain past it so it stays where it is. Specific scar massage helps break up scar tissue and then certain massage of the lymph nodes and exercise to help the fluid get sucked away to where it needs to get to be excreted from the body.
Yes, armpit and chest wall on affected side.
Yes. I have lymphodema that's above my breast and to the left of breaat in axilla region. I had radiation almost one year post mastectomy so there's some fluid build up. I massage and plan to see a PT. I also wear compression arm sleeves when I fly and sometimes when I run.