Since my 9th treatment of taxol and Herceptin, I have had constant neuropathy, pain, swelling and rash on my left hand. Right before my 11th treatment (only 1 to go), the doctor lowered the dosage to 10% and mentioned that if the symptoms get worse, then she would just not do the final treatment. Well, the rash, swelling and neuropathy has now moved to my right hand and the left one is more painful. Has anyone experienced this where they had to stop the last treatment? I'm concerned because… read more
I had to do four rounds of AC which were super super tough every three weeks. I had to follow that up with taxol 12 rounds once a week. The taxol has been easier than the AC was. My nurse had me get glutamine powder from a health store for the neuropathy but my dr also had me do 12 weeks instead of 8 because she found spreading them over a longer treatment period cut down on the neuropathy a lot. I started out taking the glutamine powder the first four days after chemo. I did that faithfully the first couple of doses but only use it periodically now and still no serious neuropathy I'll get a tingle every once in a while. The metallic taste has been bad, acid reflux, hot flashes, night sweats, nose bleeds( advised to used nose saline spray which helps a lot with the dryness and irritation). I've even noticed my hair started to grow back like the second or third round of chemo (taxol) my last one is this Tuesday. I haven't had any eyelash hair loss and my eyebrows only got thinner which I didn't mind because they're super thick normally.
Let me update I realized I did 8 rounds of chemo. I only did 4 rounds of Taxol and that kicked my but so if you can stop and of those rounds do it. If I had to do it all over again that may have been something I refused to do. But that was my thought. The worst part of the cancer for me.
With Taxol I missed my last 3 does due to neuropathy and being toxic form the med. Hurting all over, could not feel finger tips or toes, nausea, wish I could die that that point. Oncologist stop my Taxol at that point. My WBC count stated in the extreme low count also. I had my last does in July 2014. and still having problem with neuropathy.
I started having neuropathy right after my first taxol. After the third, my white blood cells dropped too far and they lowered it. The neuropathy decreased a lot. Dr said it is still effective. They are just making their best estimate on dosage based on height/weight if individual. It sounded like a routine adjustment
Well I don't have good news. I had 8 rounds of taxol with my last treatment being in January 2013. I still have neuropathy. It gets better and I am believing for it to go away completely but it is something that I have learned to live with.