I had DCIS stage 0 grade 3. I had a lumpectomy, then a second surgery to get clear margins. I had 20 sessions of radiation and was on tamoxifen for 15 months. I was initially told I would be on it for 5 years. After 15 months I was having bad side effects to the tamoxifen and was put on a two week med vacation. I switched cancer teams and my new oncologist said that he would monitor me closely but at this point the risks greatly outweighed any benefits I might receive. So I am done with all treatment. Now I am in the reconstruction phase. It’s a process.

I was diagnosed with Invasive Ductal Cancer and DCIS on Valentine's Day and had a double mastectomy April 6.
For a number of reasons, I have opted for a double mastectomy. My decision to do a bilateral mastectomy was reinforced when my surgeon went over the pathology report with me. The pathology report also found a small, tiny ductal cancer insitu in my Left breast. So had I just addressed the cancer that was evident on the scans with a lumpectomy or single mastectomy, I would have been looking at this cancer diagnosis again as soon as it was showing up on the mammogram. I am lucky that my cancer was detected early and I have been spared radiation and chemo. I just never doubted my decision before or after the surgery. I think you have to do what you feel is right for you and will make you the happiest. God Bless you.

I was diagnosed with DCIS stage 0 in 2009. Had a lumpectomy, 35 rounds of radiation and 5 years of Tamoxifen. I am coming up on 15 years now and still have yearly MRI's along with mammograms because I am considered high risk for breast cancer in the future. What I have discovered is that every persons case is different. You need to decide what is best for you and go from there. Good luck and take care.

I had a lumpectomy. Did not need chemo or radiation. Refused Tamoxafin. That was 6 mos. ago. Due for follow up mammography.

@A MyBCTeam Member did you have DCIS also?