Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyBCTeam Member asked a question 💭
Victoria, BC

Hi. So I haven't seen my oncologist yet, I meet him on April 1st ( week and a half). I had a lumpectomy and sentinel node excision about 3 weeks ago. They removed a DCIS (26mmYou) and an IDC (8mm). Nodes came back clear (yay!) but the IDC is triple positive.

So everything I read says HER2+ means Herceptin. The "book" (the intellectual patients guide to breast cancer) says that for my aside of tumour that chemo would be questionable. Have any of you done Herceptin withoutX chemo? When you do… read more

March 23, 2015 (edited)
 · 
Reactions
A MyBCTeam Member

Herceptin is given alongside chemo. I did it for the full twelve months he first 5 1/2 of which were very difficult. After that herceptin was a walk in the park. I only knew one woman who did off protocol herceptin by itself no chemo and she did not survive past 2 years :(

March 23, 2015
A MyBCTeam Member

You will have to see what your oncologist says but I don't think studies have been concluded on Herceptin by itself yet, I know most of us that are Her2+ have undergone TCH+Perjecta, they T and C are Taxotere and Carboplatin and they are "chemo" drugs that cause hair loss, fatigue, low white cell counts, etc. and from others I have talked to it seems like 6 rounds spread out 3 weeks apart(so 18 weeks altogether) is pretty standard, and then Herceptin for a year total. Your Dr will know best but wanted to share my personal experience. I start Herceptin only on next Monday...from what I've heard there are no real side effects of it, it's "targeted therapy" so not really "chemo." Best of luck to you!

March 23, 2015
A MyBCTeam Member

I would say go with you oncologist treatment plan they are you're SME subject matter experts. They give reports weekly with their peers reviewing all aspects so, you know it is the best direction you can go. If you already have done chemo you may know how your body reacts. And for all the gained days, weeks, and or months we get far out weight the cost of side effects. They have medication for most and losing you're hair is inconvenient and not the greatest but, I was without for 9 months and 3 years later my hair is longer than it has ever been- at bottom of bra strap.

March 24, 2015
A MyBCTeam Member

Well @A MyBCTeam Member that's a good enough reason to do it right hey??

March 23, 2015
A MyBCTeam Member

As I understand it and from my personal experience as well, side effects of Herceptin alone are very minimal (definitely no hair loss or nausea). I did 6 rounds of TCH (hair loss likely on this though) and now on Herceptin only. The TCH, for me, wasn't really that bad at all. I am 42 but had a pretty big tumor plus significant nodal involvement.

March 23, 2015

Related Questions

View All
A MyBCTeam Member asked a question 💭
Boynton Beach, FL

A MyBCTeam Member asked a question 💭
Ontario Canada