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A MyBCTeam Member asked a question 💭
Gretna, VA

I had my bilateral mastectomy last Friday the 23rd and today I have been kinda cold off and on and I have the sensation that my nipples are hard but obviously they are gone. Has this happened to anyone else? How long will it go on? I have heard of phantom pain when people lose limbs but didn't expect this. Thanks

January 28, 2015 (edited)
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A MyBCTeam Member

During radiation treatments, on the way home a few time I felt electric shock feelings at the site of my incision which was where my nipple was. They said it was nerve regeneration. I know that itchy feeling you can't scratch. I have it on my back where I had my lat flap taken from. I have to scratch nearby where it's not numb to get relief!

January 29, 2015
A MyBCTeam Member

The phantom pain is so real. It's been almost 3 years since my bilateral and i never got complete feeling back in my skin. But often times i think i feel something but if i touch it i really don't. Kind of weird. Or that itch you can never scratch oh that is the worst.

January 29, 2015
A MyBCTeam Member

Yes, it's called phantom pain...anyone that has lost a (finger,toe, arm, leg and breast included) have the chance for the experience. I had it with my mastectomy in July 2014,it seems to diminish with time.

January 29, 2015
A MyBCTeam Member

OMG, I also had my bilateral 2 weeks ago and am experiencing the same exact thing. I feel those nipples hurting but they are not there. Think its just our bodies trying to balance out.

January 29, 2015
A MyBCTeam Member

I called it "ghost nipple". I believe our nerve endings make us feel like something is still there! I still have TE's in and I swear I think that hard plastic gets cold in 20 degree weather!

January 28, 2015

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