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A MyBCTeam Member asked a question 💭
Minneapolis, MN

I am wondering if any of you ladies have experienced erratic and long periods while on Tamoxifen. Instead of non-existent periods, I am getting them every 15 days or so and they last for 7-10 days. I've only been on Tamoxifen for about 3 months now. I had a pelvic ultrasound before I started Tamoxifen. I have two complex cysts and fibroids. The erratic periods is only one of two side effects. The other side effect is bone/muscle pain in my legs/arms that comes and goes. Anyway, I've brought this… read more

June 10, 2014 (edited)
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A MyBCTeam Member

I am as freaked as you. My Mom and her sister had uterine cancer so I already feel predisposed. Plus I am feeling aches and pains and experiencing some cognitive problems along with splitting headaches. Do not know if I can blame it all on Tamoxifen only way to know I guess is to stop for a few months and see how I feel. Planning on talking to my ONC next visit. Will keep u posted.

June 15, 2014
A MyBCTeam Member

Update: I went to my gyno and as a precaution I had an ultrasound and endometrial biopsy. I'll get the results in 4-7 days. She keeps telling me she's not concerned but I can't help but worry. They said the same thing when I had my breast biopsy and was diagnosed with breast cancer. "Its not cancer, don't worry!"

July 17, 2014
A MyBCTeam Member

@A MyBCTeam Member good luck! i thought i read somewhere that Tamoxifen can cause headaches and pains. I had muscle pain in the first two months that has gotten better and is almost non-existent. My onc told me that if the pain gets better, its most likely not a recurrence. Pain gets more severe and doesn't come and go with mets. They also told me a typical mets/recurrence headache is one that starts right when you wake up and gets worse throughout the day. They said thats TYPICAL and not always the case. Hope that helps!? Keep me updated. Best of luck to you.

June 18, 2014
A MyBCTeam Member

No luck with any similar experiences?

June 12, 2014

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