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Tumor Markers When Should I Get Worried?

A MyBCTeam Member asked a question 💭
Midland, TX

First diagnosed tumor marker CA125 was 40, "acceptable" is 38. 3 months after chemo and Herceptin, went down to 18, 3 months later went up to 21, three months later, went up to 24. (had double mastectomy - no recon) Going for my next check up tomorrow. When do they start getting "worried" and perform more tests?

October 30, 2012 (edited)
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A MyBCTeam Member

I agree, tumor markers can make you crazy. At the time that I was diagnosed, in 2008, my tumor markers were NOT elevated, they were in the normal range. Only following surgery did my tumor markers become elevated. I don't know how doctors determine how to proceed according to the tumor markers...especially if they are going up and down.

October 31, 2012
A MyBCTeam Member

Usually my doctor orders scans when my tumor markers are above the acceptable range (I have stage IV breast cancer that has gone to my bones). Your markers will change from time to time for a number of reasons. Unfortunately, tumor markers are not all that reliable in detecting actual disease advancement. I have known people with tumor markers well over 100 with no advanced disease.

Tumor markers can make you crazy. Take a deep breath and relax. Know that your markers will bounce around. Be aware of physical signs of disease advancement (like shortness of breath, bone pain, abdominal pain, unusual lumps) and make sure you report those immediately. Best wishes to you.

October 31, 2012
A MyBCTeam Member

@A MyBCTeam Member and @Imgeorgebrca08, thank you. I just can't help feel, if I ever get symptoms, it's too late...I want to "move on" but I always have this fear if/when it comes back..

November 1, 2012 (edited)
A MyBCTeam Member

Hate tumor marker tests. Mine went up and down during chemo, as did my stress level!
Every time I go for another check-up I tell myself I don't care what it is (it is not fool-proof one way or the other) then the first thing I do is look at the number! LOL!!!
It goes with the whole messy diagnosis!
Keep your spirits up, the numbers don't REALLY determine Thoughts and Prayers your way!
:-)

November 4, 2012

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