I was taking Kisqali but it made me really depressed. Been off of it for about a month and am now feeling like myself and am nervous about starting another specialty chemo drug.
Starting radiation next week very tired.
I had a bilateral mastectomy and reconstruction in 2014. No chemo, no radiation and no meds with a diagnosis of DCIS. Everything went as planned but for the last two years, I've been on a physical downward spiral. Reconstruction is silicone implants under the muscle. I have lost a tremendous amount of strength, as there are many movements I can no longer do because the chest muscles pull tight across the implants causing them to feel displaced. In addition, I am… read more
I was dx on 1/19/16 with stage 3B IDC ER/PR+ HER2- when I was 34. I did 6 months of chemo, double radical mastectomy with a diep flap and 34 days of radiation. I have been on Tamoxifen for 2 years now. It's been okay. I have a light period or spotting monthly. This time, WAY different! My periods were never painful but this one is awful. I am bleeding very heavily but I am also passing some pretty large clots. Just saw my onc and had no idea… read more
I just spoke with my oncologist today and he said he wanted me to try Fareston-which is is similar to Tamoxifen. It is supposed to have less side effects then Tamoxifen which I was on fro about 6 months and just felt bloated and crappy. I wanted to try something else...I have tried the post menapasual meds but the last one gave me bad stomach cramps and diarrhea for about 2 weeks. So now on to this one--just wondering if anyone has taken Fareston and how are you tolerating it?
Thanks… read more
Four years out from treatment, I’m experiencing a-fib. I’ve ruled out thyroid over-medication, a likely culprit. Poking around the web (eek!) I see that latent heart effects *can* begin to develop from adriamycin/cytoxin chemotherapy or breast radiation at about the five year mark. Ulp.
Any cancer sis’s with personal experience?
And, great; I’m seeing that arimidex, my AI, can have some associated heart risk. It’s small, but it’s there.
(I have a… read more
Welcome to any new members. Sorry you find yourselves here, but you will find lots of wonderful support and information any time of day. I know it takes time and can be confusing to navigate this site, but we can all help. Just ask....there are no dumb questions, no judgements here. Even if you are not tech savvy, you can learn to do it.
Completing your story and diagnosis on your profile page will help others get to know you. It will also assist you in finding others with similar stories… read more
Hello ladies, I haven’t been on in a while haven’t felt very well since my explant. Just wondering if anyone was ever diagnosed with stage 1 IDC, PR and ER positive and her 2 negative. No lymph nodes involved, didn’t need radiation or chemo just on medication for 10 years. Curious as to re-current from my type of diagnosis of three years ago.
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