Breast Cancer

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Has anyone lowered their dose on tamoxifen?

Has anyone lowered their dose on tamoxifen?

I’ve been on it for 4 months and I’m having anxiety from the side affects and the thought of what can happen . I am on 20 mg and was thinking of lowering it but haven’t spoken to my oncologist yet . My oncho type score was a 22 so I’m not sure my doc will allow it

A MyBCTeam Member said:

Thank you Kathryn. I will certainly let you know. Because the Effexor might do a better job with my cancer induced anxiety, I’m considering it but I’ll… read more

posted 9 days ago

Breast cancer and DES

Breast cancer and DES

Looking for info on breast cancer treatment related to DES babies. My moms came back in the middle of chemo and I just had a double mastectomy in April now taking anastrozole when I ask if it works against DES cancer they look at me like I’m an alien

A MyBCTeam Member said:

@A MyBCTeam Member Years ago, a doctor knew everything about the patient. Not many specialists so our family doc delivered babies, performed surgery and… read more

posted 10 days ago

Hysterectomy surgery

Hysterectomy surgery

I am scheduled for a total hysterectomy at the end of October. I have already had a double mastectomy with tissue expanders. Out of the two surgeries, which one was the worst? Thank y'all

A MyBCTeam Member said:

Thank yall so much for all the support!! This site and you ladies are amazing!! I usually dont post much but I look everyday and see all the amazing… read more

posted 13 days ago

Clear vaginal drainage while on tamoxifen??

Clear vaginal drainage while on tamoxifen??

Has anyone experienced clear vaginal drainage while taking tamoxifen ? I am 61 years old post menopausal with a double mastectomy as of January 2017 .

A MyBCTeam Member said:

I have been on tamoxifen 2 1/2 years so far and I am supposed to be on it for five years
Did you only have to take it for a few months

posted 3 days ago

Osteoporosis after chemo and within 5 months of taking Lexitrole

Osteoporosis after chemo and within 5 months of taking Lexitrole

I just received the results of a bone density scan. The results shown that I have osteoporosis at 59 years old. My doctor would like me to begin injections every 6 months to improve my bone density along with a daily yogurt and well absorbing calcium supplements. I had 4 rounds of chemo that ended in April and began a daily Lexitrole pilli immediately after.

Has anyone experienced accelerated bone loss after chemo and during estrogen reducing… read more

A MyBCTeam Member said:

So glad you took of the Dentist. I did not and now I am having problems. I did not a full understanding of the importance of Dental work before my… read more

posted 16 days ago

New implants are disappointing.

New implants are disappointing.

Im 5 days out from bilateral mastectomy with implants. I have minimal bruising but my breasts are super lumpy and bumpy. Like a crumpled up wad of paper under the skin. Is this normal?also they seem so high up. When do they start to smooth out? Do they drop natually at all?

A MyBCTeam Member said:

Are you sure they are your permanent implants? After mastectomy, a tissue expander is usually put into place. Then saline is injected through a port… read more

posted 10 days ago

Update

Update

It's been 11 years since I was diagnosed with breast cancer and still in remission. I was tested positive in 2016 for BRAC 1 cancer gene. I was told I had a 81% chance af returning cancer. I double mastectomy and had to have 7 surgeries Nov 2016 to April 2017. I had radiation in when I was going treatments 11 yrs ago. Radiation therapy is good then but bad years later. My surgical wound on my right breast would not close. On the last surgery the doctors us wound vac and home health to finally heal.
I… read more

Is the journey straight from LCIS to Invasive cancer, because it breaks out of the duct Or can it turn into DCIS first?

Is the journey straight from LCIS to Invasive cancer, because it breaks out of the duct Or can it turn into DCIS first?

I notice a lot of ladies in here with lcis seem to become invasive within 2 years of diagnosis

A MyBCTeam Member said:

@A MyBCTeam Member: I started tamoxifen right after i finished chemo. After that I had a lymph node dissection and then radiation.

posted about 1 month ago

To those with small kids, when did you tell them about your diagnosis?

To those with small kids, when did you tell them about your diagnosis?

So far I have 'only' been diagnosed with LCIS, so I haven't said anything yet. My plan was to wait until there were 'obvious' changes - hospital stay/surgery etc The 'danger' is obviously the more adults find out, kids can overhear something etc

A MyBCTeam Member said:

Two other books I have heard of that are good for young kiddos, is Nowhere Hair, and Cancer Hates Kisses.

posted about 1 month ago

Questions about having breast lift / balancing surgery after single mastectomy

Questions about having breast lift / balancing surgery after single mastectomy

I am considering having a balancing / breast lift on my remaining breast. I like the idea of my breasts looking more similar, but I am concerned about the 10-15% chance of losing sensation in the remaining breast. Has anyone else made this decision and what helped you decide either way? How did it turn out?

A MyBCTeam Member said:

Oh KariBroadheadDoherty,
Iam sorry. I have had a real botched bilateral LYMPHODEMA
Surgery in Dec, My left breast has collapsed, my right continuously… read more

posted 25 days ago
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