Breast Cancer

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Anyone stop taking the 5 year pill? I cant take the side effects anymore!

Anyone stop taking the 5 year pill? I cant take the side effects anymore!

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A MyBCTeam Member said:

Hlafway through my 4th year on letrozole (AI). I was going to ask for the BCS blood test a year from now to find out if I could safely stop it, but… read more

posted 1 day ago
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What was the stupidest thing someone said to you when you announced your diagnosis?

What was the stupidest thing someone said to you when you announced your diagnosis?

I know that we are all supposed to focus on the positive only so if this question is out of line please just disregard or ask Mary to delete it. I know that I personally started to cringe at some of the things "well meaning" friends/family/perfect strangers would say when they found out I had BC. I always tried to temper my outward response by thanking them for their kind thoughts and words because I know cancer makes most people… read more

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A MyBCTeam Member said:

Wow, what terrible things people say to us! About the estranged sister; I can relate. Haven't spoken to mine in many years. I did get an email from her,… read more

edited, originally posted about 2 months ago
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How public are you about your cancer diagnosis?

How public are you about your cancer diagnosis?

I recently diagnosed and have surgery scheduled for this Friday. Obviously my immediate family (so now extended family) know; my close friends know; and my employees know. But I'm struggling with whether to tell others... Like my regular customers, other friends I don't see often, etc. On the one hand, I hate the pity I see when I tell people. But on the other hand, I want to shout it out on facebook for all women to check themselves because it can happen to anyone.… read more

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A MyBCTeam Member said:

I did not share my diagnosis on social media since some of my connections are not very close to me and I did not want the deluge of comments albeit… read more

posted 3 months ago
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Are you afraid of a recurrence of your cancer?

Are you afraid of a recurrence of your cancer?

I am among the women who was first diagnosed with breast cancer that was Stage 2 with nothing in the sentinel nodes and then 2 1/2 years later found out the breast cancer had spread to bones, liver, lung (Stage 4). The first time I didn't want to know anything about women whose breast cancer had recurred and metastasized. It was too scary. The reality is that many of us (~30%) will have a recurrence.

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A MyBCTeam Member said:

I hate cancer too. I try to be strong for my family but everyday I'm terrified it will come back. My mastectomy was 3 yrs ago then chemo. I still have… read more

posted about 2 months ago
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Chemo alternatives

Chemo alternatives

Hi, I just got a call from my surgeon with oncotype score of 28. My oncologist had told me if it came back 25 or higher she would recommend chemotherapy. I know chemo saves lives, but I am terrified of it because I know it does a lot of damage in the meantime. I'm not saying I will refuse chemo, but just wondering if there is anyone out there who has heard of or used an alternative method to chemo. I have a double mastectomy coming up as well, another challenge that I am not looking forward… read more

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A MyBCTeam Member said:

It really depends on what type of Chemo. I had Tamoxifen which was a aggressive chemo. Horrible. Then later he changed it to Alimpta which wasn’t as… read more

posted 15 days ago
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How do you get over being so tired?

How do you get over being so tired?

I find that I get so tired from doing everyday things and can't do a lot 2 days in a row. I am 8 months out of lumpectomy and 4 months out from radiation ? Any helpful hints or ideas. I am on tamoxifen

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A MyBCTeam Member said:

Radiation can make you fatigued. I had it too. After I finished I thought yeah back to normal. But no. It’s a slow climb. I seem to have data where I… read more

posted about 2 months ago
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Why chemo?

Why chemo?

I know I might ruffle a few feathers but why do people go thru chemo just because doctors say it's part of cancer. I realize there are many of you who absolutely need it but I'm also seeing it being done with women who are stage 1 or 0 or who score low on onco testing. Some are being told right at the time of dx without any further tests being done. It seems so unnecessary for some considering the side affects and long recovery time. I don't mean to anger anyone but does anyone else feel the same?

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A MyBCTeam Member said:

My mother refused chemo. Her cancer returned 3 times and was metastatic the last time. I did the chemotherapy. I am currently alive and cancer free. My… read more

posted 2 months ago
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So I am about 6 month cancer free. What I am struggling with is people seem to think you get back to normal like the flu.

So I am about 6 month cancer free. What I am struggling with is people seem to think you get back to normal like the flu.

Especially at work and with my teenagers. Sometimes I feel depressed. Emotionally its like a bit of Past Tramatic Stress Syndrome combine with a body that will take a year or two to get back to normalish. How do you deal with this?

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A MyBCTeam Member said:

I have the same problem. Had lung cancer and did lobectomy surgery no after treatment needed. But complications with lung collapse and infection had… read more

posted 17 days ago
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To women who have tissue expander implants...

To women who have tissue expander implants...

Hi ladies who are suffering from what I liked to call "rock boob syndrome". I wanted to post this as someone who had tissue expanders in for 8 months, gone through exchange, and seen the other side of it all.

1. I know tissue expanders suck. They are severely uncomfortable and you feel like a weight is on your chest constantly. Sleeping on your side is uncomfortable and sleeping on your stomach is impossible.

2. I had my expanders in for about 8 months as I… read more

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A MyBCTeam Member said:

Expanders are awful & teardrop implants will feel like a dream

posted 7 months ago
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I just finished #17 of 28 radiations on my breast tumor. The fatigue is kicking my butt - did anyone stop before the end?

I just finished #17 of 28 radiations on my breast tumor. The fatigue is kicking my butt - did anyone stop before the end?

I have just completed #17 of 28 radiations on my breast tumor to shrink it. I can't stand the fatigue any longer - has anyone else said "enough" and quit before they completed the 28? What happens if you quit? Thanks!

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A MyBCTeam Member said:

Stay until the end and he cancer free don't give up the fight my pink sister

posted about 1 month ago
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