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A MyBCTeam Member asked a question πŸ’­
San Antonio, TX

I'm 8 weeks post surgery for a single mastectomy. The muscles on my side near the scar where they removed the lymph nodes gets tight and sometimes cramps or spasms. Anyone with similar issue? How long does this healing stage last?

August 20
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A MyBCTeam Member

Wow, Rose, you've had a terrible experience! I had a dear friend some years ago who had a similar experience. I hope you're on the mend now. πŸ™

August 30
MyBCTeam

What you're experiencing is really common after lymph node removal and mastectomy. The tightness, cramping, and spasms are often related to the connective tissue layer over the muscle β€” it can become "sticky" and not slide smoothly, similar to scar tissue forming.

The honest answer on timing? It varies a lot from person to Show Full Answer

What you're experiencing is really common after lymph node removal and mastectomy. The tightness, cramping, and spasms are often related to the connective tissue layer over the muscle β€” it can become "sticky" and not slide smoothly, similar to scar tissue forming.

The honest answer on timing? It varies a lot from person to person. Some people see improvement within weeks, while others experience ongoing discomfort for months or even years after surgery. One thing to watch for is a condition called axillary web syndrome (also called cording or banding), where tight bands of scar tissue form and can limit movement. It's worth mentioning your symptoms to your care team.

Here are some things that may help:

- Physical therapy β€” a physical therapist or lymphedema therapist can create a tailored treatment plan
- Massage therapy β€” some MyBCTeam members found regular massage helpful for the fascial tightness
- Gentle stretching exercises β€” to help regain flexibility
- Anti-inflammatory medications β€” as recommended by your doctor
- Cold packs β€” to help manage pain and swelling It's really important to flag these symptoms to your healthcare provider so they can rule out complications and guide your recovery plan. You're only 8 weeks out β€” be patient with yourself, healing takes time! πŸ’›

August 20
A MyBCTeam Member

In some cases, like mine, the muscle spasms and pain never go away. I was butchered by my first reconstructive plastic surgeon over the course of 4 surgeries. Among other multiple issues, he left muscles detached and I couldn't move my arms in certain ways. My 2nd reconsructive surgeon fixed the carnage and reattached the muscles, but it took 5 more surgeries to reconstruct me enough to look normal when dressed, but like a train wreck undressed. After the first surgeon the permanent damage was already done. I was left with post mastectomy pain syndrome and iron bra syndrome. I have been on muscle relaxers and pain meds ever since the double mastectomy. Without them I can barely move and muscle spasms and nerve pain are intolerable.

Ask your doctor if there's anything that can be done to help. You could need a different/stronger muscle relaxer. For some people physcial therapy can make a difference, for others it doesn't work. With most surgeries the majority of the healing occurs during the first couple months, but it typically takes at least a year for you to heal 100% and reach your new normal, which is typically less than where you were before you ever had your most recent surgery. Some of the pain you are feeling can also be nerves regenerating that were cut during surgery. If you continue to have ongoing pain be sure to keep your doctor updated so they can do something to help deal with that pain.

August 26
A MyBCTeam Member

I had my surgery June 30th and the first 3 weeks the spasms were so painful it felt like someone was stabbing me with a hot knife. I would just scream in pain. Now it's less severe but I'm ready for this to be over already!

August 21
A MyBCTeam Member

I’m going through the same exact thing!!! Mastectomy, and lymph nodes.Just had mine done August 6th sometimes it’s tolerable other times burns and very sensitive!

August 20

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