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My oncologist says I need to continue with the treatment. Do you think this is necessary. It’s pretty expensive

January 16
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A MyBCTeam Member

The Ibrance supplier is working with me through Accredo. They have it down to $215 month It is the Fulvestrant that is causing cost. Both of these drugs are up in the Thousands of dollars IT IS RIDICULOUS . The hospital even charges to GIVE ME THE SHOTS I am going to get with them and find out why there is this extra charge. This is the inly meds I have ever had administered by a doctor that I had to pay extra for the nurse to give the shots

January 18
A MyBCTeam Member

I'm on Ibrance and Letrozole. My oncologist says I need to take Ibrance for 3 years and Letrozole or another AI for the rest of my life. I've had breast cancer twice now. Both times my breast cancers were HR positive and HER2 negative. The first time it was not aggressive. When it returned 7.5 years later it was very aggressive and stage 3c. Without both of those meds my odds of it coming back are 50%. Taking both of those drugs lowers my odds of recurrence to 30%. I'm on disablility and have Medicare. Being on Medicare disqualifies you from receiving financial aid from most drug manufacturers, including for Ibrance. I was able to get charity for the Ibrance which is covering 100% of the cost. My oncologist's assistant submitted my charity application to 2 different charity groups and I was approved within a week. Ask your oncologist about applying for charity.

January 18 (edited)
MyBCTeam

Why does your oncologist recommend continuing Ibrance and fulvestrant even with clear scans?

It's wonderful that your PET scan shows no cancer spots and your blood work looks great! That's definitely something to celebrate. However, continuing treatment even when scans are clear is actually a common and important approach Show Full Answer

Why does your oncologist recommend continuing Ibrance and fulvestrant even with clear scans?

It's wonderful that your PET scan shows no cancer spots and your blood work looks great! That's definitely something to celebrate. However, continuing treatment even when scans are clear is actually a common and important approach for advanced breast cancer.

The combination of Ibrance (palbociclib) and fulvestrant works continuously to keep cancer from progressing. Think of it like this: the treatment is what's keeping those scans clear. Stopping too early could allow cancer cells that aren't visible on scans to start growing again.

For advanced or metastatic breast cancer, maintenance therapy is typically a long-term treatment. The goal is to keep the cancer controlled for as long as possible, not just to treat visible disease.

Your oncologist is following standard guidelines by recommending you continue. The treatment is working well for you, which is exactly why it's important to stay on it.

Regarding the cost, this is a very real concern. Consider discussing these options with your care team:

* Financial assistance programs from drug manufacturers
* Patient assistance foundations
* Social workers at your cancer center who specialize in financial navigation
* Alternative insurance coverage options

Your oncologist's office may have a financial counselor who can help explore ways to make treatment more affordable while keeping you on the regimen that's working so well.

January 16
A MyBCTeam Member

Yes, it is necessary. I had a perfectly normal scan in May 2024. 3 months later my scan lit up like a Christmas tree. I had my 2nd breast cancer diagnosis and it was very aggressive. There were 3 new tumors and 16 of the 18 lymph nodes removed from my chest and armpit were positive. I ended up having 3 surgeries, 6 months of chemo, and 20 radiation sessions with boosts during the last week. Cancer can return quickly and with a vengeance. CDK inhibitors were originally prescribed to stage 4 patients. If you are stage 3 and have an aggressive cancer your doctor will put you on a CDK inhibitor.

If you are having too many side effects from CDK or AI meds ask your doctor to lower your dose or switch you to a different one. Many doctors start patients on a medium to high dose of these meds, but scientific studies show the lowest dose is usually adequate for most patients.

June 15
A MyBCTeam Member

I wonder the same thing, but because the ibrance and fulvestrant make me so tired physically. No energy at all and I would love to just for a little while feel normal again.

June 14

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