I was recently diagnosed Stage 1 Triple Negative Invasive. I had two surgeries within the last 3 weeks - lumpectomy and lymph node. I will be having chemo and then radiation. I really want a mastectomy but my oncologist appears to be against it. Has anyone had treatment and 3-5 years later, it is working best for you?
I sorry you find yourself in this journey!
TNBC 2018, stage 1, 1 cm, grade 3. I had chemo, surgery and radiation. When I met my surgeon, I said I want bilateral mastectomies. She recommended against it, and said this having chemo first, I “have the gift of time”, she said to do research, get a second opinion, and I still want the bilateral, she would do it. My breast MRI showed nothing in the lymph nodes, and I tested negative for BRCA or any known genetic mutations. My research and second opinion said the same thing. I really struggled with this decision. You can still have a recurrence with no breasts. I had huge breasts and had always wanted a breast reduction. That is the route I went, reduction on the non cancer side, a huge lumpectomy with reconstruction. For a long time, I agonized over this decision.
6+ years later, here I am, no evidence of cancer.
I truly believe a second opinion is never a bad thing, especially one has any reservations.
Wishing you well!
Has been 3 years already
Hi TNC I was diagnosed in July 2023 and this July has been years already I had a lung screening but haven't heard from it yet been over 2 weeks so I pray all is well
I was the opposite where I chose to get a preventative bilateral mastectomy (due to a PTEN gene mutation) they suspected nothing, saw nothing on twice a year imaging and felt nothing in multiple exams, only to be diagnosed with 2 cancers in my labs after. No symptoms, no pain. But without the mastectomy I wouldnt have known about my Metaplastic Carcinoma Triple Negative Stage 1 (5MM). So I'm grateful I did it but I do think getting a 2nd opinion is a great idea. Just to give you piece of mind
It's understandable to feel concerned about your treatment plan. For early-stage TNBC, both lumpectomy and mastectomy can be effective surgical options. Your oncologist may be recommending the lumpectomy with follow-up chemotherapy and radiation because research shows this combination can be just as effective as mastectomy Show Full Answer