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TNC

A MyBCTeam Member asked a question 💭
Tyler, TX

I was recently diagnosed Stage 1 Triple Negative Invasive. I had two surgeries within the last 3 weeks - lumpectomy and lymph node. I will be having chemo and then radiation. I really want a mastectomy but my oncologist appears to be against it. Has anyone had treatment and 3-5 years later, it is working best for you?

July 10, 2025
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A MyBCTeam Member

I sorry you find yourself in this journey!
TNBC 2018, stage 1, 1 cm, grade 3. I had chemo, surgery and radiation. When I met my surgeon, I said I want bilateral mastectomies. She recommended against it, and said this having chemo first, I “have the gift of time”, she said to do research, get a second opinion, and I still want the bilateral, she would do it. My breast MRI showed nothing in the lymph nodes, and I tested negative for BRCA or any known genetic mutations. My research and second opinion said the same thing. I really struggled with this decision. You can still have a recurrence with no breasts. I had huge breasts and had always wanted a breast reduction. That is the route I went, reduction on the non cancer side, a huge lumpectomy with reconstruction. For a long time, I agonized over this decision.
6+ years later, here I am, no evidence of cancer.
I truly believe a second opinion is never a bad thing, especially one has any reservations.
Wishing you well!

July 10, 2025
A MyBCTeam Member

Has been 3 years already

July 15, 2025
A MyBCTeam Member

Hi TNC I was diagnosed in July 2023 and this July has been years already I had a lung screening but haven't heard from it yet been over 2 weeks so I pray all is well

July 15, 2025
A MyBCTeam Member

I was the opposite where I chose to get a preventative bilateral mastectomy (due to a PTEN gene mutation) they suspected nothing, saw nothing on twice a year imaging and felt nothing in multiple exams, only to be diagnosed with 2 cancers in my labs after. No symptoms, no pain. But without the mastectomy I wouldnt have known about my Metaplastic Carcinoma Triple Negative Stage 1 (5MM). So I'm grateful I did it but I do think getting a 2nd opinion is a great idea. Just to give you piece of mind

July 10, 2025
MyBCTeam

It's understandable to feel concerned about your treatment plan. For early-stage TNBC, both lumpectomy and mastectomy can be effective surgical options. Your oncologist may be recommending the lumpectomy with follow-up chemotherapy and radiation because research shows this combination can be just as effective as mastectomy Show Full Answer

It's understandable to feel concerned about your treatment plan. For early-stage TNBC, both lumpectomy and mastectomy can be effective surgical options. Your oncologist may be recommending the lumpectomy with follow-up chemotherapy and radiation because research shows this combination can be just as effective as mastectomy for Stage 1 cancer, while being less invasive. Regarding long-term outcomes, it's important to know that the first 3-5 years after treatment are critical for TNBC patients. While about 40% of people with stage 1-3 TNBC may experience recurrence during this time, many patients do achieve remission with their prescribed treatment plans. The combination of surgery, chemotherapy, and radiation provides a comprehensive approach to treating the cancer and reducing risk of recurrence. If you have ongoing concerns about your treatment plan, it's important to have an open discussion with your oncologist about why they recommend this specific approach for your situation. You might want to ask about specific factors they considered when recommending lumpectomy over mastectomy, as treatment decisions are highly individualized.

July 10, 2025

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