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June 4, 2025
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A MyBCTeam Member

Losing your hair is the least of the problems your body will face. I too freaked out when I lost my hair but it is what it is. The cold cap is tooooooo expensive. I got some really sweet and cute hats. I, myself, am not a wigger, I opted for hats. But whatever makes you happy you do.

June 4, 2025
A MyBCTeam Member

Check resources available. I was able to get my wig free from the cancer center at my medical center.

June 4, 2025
A MyBCTeam Member

Wow lost 80%. I agree it's better going into it knowing you will lose it. I don't want false promises. Thank you and God bless in your journey.

June 4, 2025
A MyBCTeam Member

I used it and list 80% of my hair per my hairdresser. It was very distressing for me. I personally would have dealt better just knowing and accepting I would lose my hair. Plus it was expensive, time consuming, and the brain freeze…horrible!

June 4, 2025
A MyBCTeam Member

I get it, loosing your hair is hard! It isn’t just a vanity thing. It’s first thing people see on you. Plus, then you look like a cancer patient.

The goal of cold capping is to keep up to 50% of your hair.
I work in a breast cancer clinic. We have Paxman cold capping. The machines were donated, I do not believe we make a profit from it. The caps are single use, and expensive. I think the maximum cost is $2400 for 12 treatments, the company does not charge for any caps after that. Paxman has a website that you can put in your regimen and they will tell your chance of keeping hair. We have had success with Taxol, some Enhertu, Carbo/gem. It has not worked for AC it TCHP. The rep said if you do lose your hair, it may come back sooner.
I have patients do Penguin capping. I think it is expensive. It uses dry ice. 3 of the 4 kept a significant amount of hair with TCHP. The few that tried for AC did not have great success.

If I had been offered it, I would have jumped at it. But I couldn’t have done it. I am told that the brain freeze headache can be rough. I had chemo during the winter of the polar vortex, I was cold all time. You have to cold capping 30 minutes before and up to 90 minutes after. I didn’t want to spend extra time at treatment.

I do encourage my metastatic patients to consider it. For curative with a harder regimen, it grows back. But it is a very personal choice.

I am told there is a Facebook page for it. If I was considering it, I would look into it.

Wishing you well!

June 4, 2025

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Atlanta, GA