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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Trileptal (oxcarbazepine), like some other anti-epileptic drugs (AEDs), can potentially affect bone health and may increase the risk of osteoporosis or osteopenia. However, it's generally considered less likely to cause significant bone loss compared to some older AEDs like phenytoin,phenobarbital, and carbamazepine.

Here's a more detailed explanation
Mechanism of Action:
Trileptal, like other AEDs, can indirectly affect bone health by interfering with vitamin D metabolism. Some AEDs,… read more

June 1, 2025
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A MyBCTeam Member

I developed osteoporosis 2 years ago and now I have to get a prolix injection every 6 months. I believe it is from chemotherapy. How ever I am a 24 year survivor. I was supposed to take tamoxifen after chemo but I refused to. I don’t like the side effects. I’m also a retired Oncology Nurse of 31 years caring for cancer patients. Everyone is different in what stage cancer they have. So I believe there is no right answer for everyone. God Bless us all. ♥️

June 1, 2025
A MyBCTeam Member

Bottom line, nothing we take is safe, everything we take for something winds up causing problems elsewhere. When will we have actual safe drugs that do not no harm? What happens to children to have seizure disorders and are on these drugs from childhood on? Parents are happy the drugs are working and overlooking problems that could arise in the future. When we are on 2-3 drugs that come with the same side effects, its double-triple trouble. I honestly wish I could just stop all drugs.

June 1, 2025
A MyBCTeam Member

I have stage 4 BC and in the 2 yrs of being officially diagnosed I only have had one new bone mets. 2 bone mets were found when it was discovered I was stage 4 and I never gave up sugar and eat lots of it. I never fast either. If sugar fed my cancer I would have 10 bone mets by now. Every cancer is unique, some grow fast, others grow slow but in my opinion what I eat has nothing to do with it.

June 1, 2025
A MyBCTeam Member

Personally Karen, I don't even want to take prescribed drugs and I have refused many prescribed drugs so I know I would never take drugs not prescribed. I am sure Ivermectin has its benefits but I would need studies to prove a drugs efficacy before considering something out of the ordinary. There are some studies going on but they are in the early stages.

June 1, 2025
A MyBCTeam Member

I get it Barbara it's not for everyone. I guess I will be the one to follow the next 10 years hehehe. The cancer was positive in my lymph nodes too so I am really taken this very serious. I pray everyday I am taking this protocol that I am doing the right thing but ultimately for the sake of all cancer victims someone has to take the chance!! I am that gal woot woot!!!

June 1, 2025

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