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A MyBCTeam Member asked a question 💭
Lansdowne, PA

I'm just curious how many women who take an AI are taking it alone and how many women are also taking the infusions and injections to prevent bone loss?

November 14, 2023
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Answer Summary

Members shared their varied experiences with aromatase inhibitors (AIs), with many taking bone-strengthening infusions like Zometa or Prolia... Read more

Members shared their varied experiences with aromatase inhibitors (AIs), with many taking bone-strengthening infusions like Zometa or Prolia every six months alongside medications like Anastrozole, Letrozole, or Exemestane, while others with good baseline bone density chose to monitor through regular DEXA scans and rely on calcium, vitamin D3, and weight-bearing exercise instead. Several members discussed practical strategies for managing bone health, including taking D3 with K2 (specifically MK7 from non-estrogen sources) to direct calcium to bones rather than arteries, using Claritin and Tylenol before infusions to reduce flu-like side effects, and incorporating strength training and daily walking with ankle weights. A recurring theme was the importance of self-advocacy when navigating complex treatment decisions, with members encouraging one another to research options thoroughly, ask questions about side effects like osteonecrosis of the jaw, and push back against medical recommendations that don't align with their personal risk tolerance or quality of life priorities.

A MyBCTeam Member

Hmmm, my oncologist recommended calcium plus D3 and didn’t mention these things, so thanks for the heads up, I will ask him.

February 1, 2024
A MyBCTeam Member

Nothing but bone density tests at the moment. But my last test showed pretty good bone health

December 7, 2023
A MyBCTeam Member

I take exemestane. 3.5 yrs, 2 bone scans. I exercise daily with strength exercises, walk as often as weather allows and take D3- K2 recent scan shows K2 is doing a good job. I had osteopenia before diagnosis. Still registering as osteopenia. But with slight improvement. Careful to take K2 with MK-7 derived from non estrogen source. See onco after Christmas. He will be shocked at results. Had only been using K2 for 5 weeks at time of bone scan. Did my research from NIH, and studies in Korea, Denmark, UK, Spain. Amazing what you can discover has been found in worldwide research. I cannot take calcium supplements, so d3-k2 is my go to now!

November 23, 2023
A MyBCTeam Member

I’ve been on Letrozole for 8+ years. Have a DEXA scan every 2 years. Had my 3rd or 4th scan in August and bones are still going strong so not taking anything else. Dr very pleased that my bones are in the range of a 20-30 year old. I exercise, take calcium and vitamin D.

November 17, 2023
A MyBCTeam Member

I am on anastrozole. I take a calcium supplement and D3.

November 15, 2023

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