Other than my original mammogram (3D) and the ultrasound performed same day and then the ultrasound for the biopsy procedure my doctors have ordered absolutely no further imaging tests. How normal is this practice? I’m a little freaked out because everyone I know that has been on this journey has had some sort of imaging test. Further concerned because a metasis that was found in the sentinel node of my right breast was almost as big as my tumor, yet it was missed in the mammogram? I had a double… read more
I didn't have a CT or PET scan upon diagnosis, but I didn't have any spread to the lymph nodes. I did have a breast MRI as part of the diagnosis. Now that I have had a bilateral mastectomy, all that I will have going forward are clinical exams. I guess they would do imaging if they found something suspicious. I would feel more reassured by having periodic ultrasounds of the armpits, to check the lymph nodes.
Unfortunately most of us don't get scans post treatment/surgery however you should've had a CT, PET Scan and breast MRI at the time of diagnosis. If they didn't do this once they found node disease at the time of surgery then I'd probably find a new Oncologist. A breast MRI isn't likely indicated as you no longer have breasts but the CT and PET should be done particularly since you had mets in your lymph nodes. I just had a CT 3 years post treatment but only because of drastic wt loss. I was lucky to get it as my daughter had passed away suddenly and clearly grief was the most likely problem and even luckier that grief was the only problem found. I lost weight for 6 full months after she passed away. Otherwise I've been told no scans are typically done as it doesn't change morbidity and mortality rates. As an RN I still disagree. It seems like as women we still get the short straw. I also think the sooner they discover metastatic disease perhaps the better but unfortunately no-one asked me. It does seem like some women here get scans... At least insist that they do them since you had node disease... Hugs
I had gone to the dr because of a rash and was told to get a mammo. I had one done Feb 25, had biopsy Feb 26 and told I have IDC on Feb 27. Since then I have had an additional biopsy and an MRI. Now this week I see the dr again and right after meet with a genetic dr. It has been a crazy 3 weeks.
Finished my infusion schedule (took over a year!), after having the single mastectomy- per surgeon and oncologist, nothing on their end except a 6 months checkup!