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All I seem to read on here is how terrible they all are - anyone having a good experience on them??
Answer Summary
Members shared overwhelmingly positive experiences with their five-year hormone therapy pills, with many reporting minimal or no side effects... Read more
@A MyBCTeam Member and @A MyBCTeam Member - did your oncologists order ECGs for you? Because of all the meds and possible side effects, from chemo to estrogen blockers, I had to get ECGs before and after chemo and will have to have another one at the 1 year mark from starting estrogen blocker. You oncologists should also be suggesting alternative estrogen blockers if the one you are on is not working for you. I just had my 6 mo. post-chemo check-up with my oncologist and we discussed the benefits of estrogen blockers vs. not taking them. Of course, studies show that taking them for 5 years gives a better chance of not having the cancer return and now they are saying that taking them for 10 years gives an even better chance of the cancer not returning.
I am taking Anastrozole, but only been on it for a month, and so far no side effects. My girlfriend has been on the same drug since 2019 and no side effects either. Keeping my fingers crossed that it stays this way. My oncologist said that the side effects usually show up in the first month and then get better. I think everyone is affected differently.
I tried 2 and the side effects caused me to go off of them.
I’m on Letrozole am side effects are I have are insomnia muscle aches wright gain that’s most ones for me with that. I don’t know if there is any thing without side effects. I do hope this helps.
Letrozole is the sister drug to anastrozole same side effects. I suffered terribly on anastrozole and refused the Letrozole due to this. Tamoxifen I won't take due to blood clotting I had my veins done and both my father and son had terrible veins and got DVT so that's a risk I won't take. These maintenance drugs have terrible side effects and can cause some major health issues I don't want to live 5 years plus in total misery which I would on those drugs. I'm about to start a drug called Neratinib worst side effect I can see is diarrhoea which they will give me something for that. Check out alternatives not everyone can take what they want to give us so look around ask questions . I feel they prescribe these drugs because that's the done thing but there could be something better out there for you. Good luck warrior
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