I have had sensitivity reactions (pancreatits/sensitivity pain crisis to grastofil and paclitaxol and a few other medications) Two of these reactions have been severe pain crisis, flushing, shortness of breath- to grastofil and paclitaxol senstivity on first infusion which were treated with dexamethasone / benadryl and dexamethaone. Stopped grastofil but continued with paclitaxol. I am literally terrified to have the zolendric IV but know it is a good treatment to have. Does anyone have any… read more
Yes, thank you for sharing that - some of these allergies are connected chemical families - so it is worthwhile having an understanding of them for your health team. PABA is used in dental anesthetics and I am allergic to Polyhexamethylene biguanide (PHMB) and Chlorhexidine which they use in surgeries and on dressings. One nurse stuffed my incision with a dressing soaked in PHMB even though I said that I was often allergic and within hours I ended up almost with sepsis (white blood count 24,000 overnight). Which delayed my chemotherapy for months. It was my oncologist and one anesthiologist who said 'tell people you have a PABA and Sulfa Allergy. But it is not helpful for people to tell you 'I've never heard of this reaction before...
I was a blonde as a baby and lately I have had allergic reactions to many meds. used on me since 2019. Seems too that the older you get, the more chances one has for sensitivity....I now seem to have some type of plastic sensitivity and could not use a sleep apnea machine. Do not know if it was the silicon foam inside, hose, nosepiece or plastic box. The sleep tech said she had never heard of this and kept telling me to keep trying. After this, I posted not to use latex on me. Do not want to take a chance.
I was allergic to the disolving stitches used for lumpectomy and got granolomula lumps all across the stitches. That is an oddity too.
So, I understand what you are saying. Was allergic to one dental anesthesia and the yellow dye used to dialate eyes at the eye doctor.
Hi Sue...lol.. yes I'm a redhead. The paclitaxol reaction was right away - but most of my sensitivities are delayed reactions (dental anesthetic 2 to 3 days). So, yes I can address the first day easily - and I do have an EPI pen. I have learned the hard way that doctors say 'mild pain' for which you can take a tylenol is often fairly moderate to severe pain for me. My oncologist suggested I take TWO extra strength tylenols for the day of and afterward. I can deal with some bone and muscle pain for a few days to a week... but I am worried about longer term effects and mostly the reaction a few days afterward.. it took me six months of severe edema to find out that this was the effect of a blood pressure medication they put me on at the start of chemo.. I thought it was the chemo causing it.
but yes, perhaps I can take benedryl for a few days before and afterward. thank you!
Can you take benadryl before the procedure? Can they skin test or somehow test you with the zolendric before the IV? Would one of those IPI pens help you just to always have? Can you get a prescription to have one just to always carry?
Can they give you a plan of action? They need to address this so you will feel better. I learned that blondes and redheads have more allergic reactions.
Do most reactions happen in the first hour? (I think so but do not have any medical background.)
****(Ask them this Q.)
If so, you could stay nearby for an hour or more and have a friend with you.
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