I had a modified RADICAL mastectomy. Now 4 yrs later I'm getting severe sharp pains (fleeting) that make me scream. Especially at drive through windows. These spasms are startling and scary. Sometimes I wake up with one. No therapy for me, so don't suggest it. I am sick of dr appts after 4 1/2 yrs of them. Just wondered how common radical mastectomies were in this day and age.
I am stage IV,
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I have to point out something ... the pain is especially bad at drive-through windows? Like fast food windows? Maybe that's your body telling you not to eat anymore of that junk food!!!!
Of course, I am joking. But a little humor helps and I want everyone to smile and laugh more.
Best wishes you feel better!
Is there a possibility that it's nerve pain? I had a BMX in February and I have been getting it. PS said it may mean I will get some feeling back. Gave me gabapentin for the nerve pai. and it has helped
I am Stage IV as well and 8 years out from my bi-lateral mastectomy. For the first several years, I would have sharp pains as well. I also had "phantom" pain where the tissue was. My breasts would hurt even though they weren't there. I would say it was a combination of things that helped me. First, the longer you are away from surgery, the better. I also use a combination of cardiovascular exercise and yoga. You can do simple stretching that you can find the exercises for on-line. You don't even need to leave your house. I did go to Physical Therapy initially to learn how to do the stretches and highly recommend it if you have never been to PT. It is not the same as a regular doctor appointment. More like meeting with a personal trainer several times a week which was super beneficial for me at first. After you learn the stretches, you can continue at home on your own. If you are set against PT, there are plenty of resources on-line now to strengthen your upper body and your core. You can google how to do all that. Hope that helps you. I am hoping you find that the further you are out, the less pain you will experience. If the pain os really intense, you should discuss with your Oncologist. Hugs, Paula
Specific to your question, I understand that when oncology goes so far as to recommend MX, it will almost always be MRM. Those who elect to have prophylactic or are recommended to have LX but opt for MX *may* have Simple MX. Again, my understanding is that if disease is in multiple nodes, MRM is on the table and used frequently.
Yes to the pain four years out. Very similar to what you describe.
I 💕 u!
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